<?xml version="1.0" encoding="UTF-8"?>
<!DOCTYPE article PUBLIC "-//NLM//DTD JATS (Z39.96) Journal Publishing DTD v1.3 20210610//EN" "JATS-journalpublishing1-3.dtd">
<article article-type="research-article" dtd-version="1.3" xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xml:lang="en"><front><journal-meta><journal-id journal-id-type="publisher-id">kulawr</journal-id><journal-title-group><journal-title xml:lang="en">Kutafin Law Review</journal-title><trans-title-group xml:lang="ru"><trans-title>Kutafin Law Review</trans-title></trans-title-group></journal-title-group><issn pub-type="ppub">2713-0525</issn><issn pub-type="epub">2713-0533</issn><publisher><publisher-name>MSAL</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="doi">10.17803/2313-5395.2022.1.19.099-118</article-id><article-id custom-type="elpub" pub-id-type="custom">kulawr-158</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="en"><subject>ARTICLES</subject></subj-group></article-categories><title-group><article-title>Genetic Ombudsman: The Need for and Concept of Functioning in terms of New Measures of Legal Freedom</article-title><trans-title-group xml:lang="ru"><trans-title></trans-title></trans-title-group></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0002-4129-2682</contrib-id><name-alternatives><name name-style="western" xml:lang="en"><surname>Voronin</surname><given-names>M. V.</given-names></name></name-alternatives><bio xml:lang="en"><p>Maksim V. Voronin, Cand. Sci. (Law), Associate Professor</p><p>1 stroenie 13 Leninskie Gory, Moscow 119991</p></bio><email xlink:type="simple">maksim.v.voronin@mail.ru</email><xref ref-type="aff" rid="aff-1"/></contrib></contrib-group><aff xml:lang="en" id="aff-1"><institution>Lomonosov Moscow State University</institution><country>Russian Federation</country></aff><pub-date pub-type="collection"><year>2022</year></pub-date><pub-date pub-type="epub"><day>06</day><month>04</month><year>2022</year></pub-date><volume>9</volume><issue>1</issue><fpage>99</fpage><lpage>118</lpage><permissions><copyright-statement>Copyright &amp;#x00A9; Voronin M.V., 2022</copyright-statement><copyright-year>2022</copyright-year><copyright-holder xml:lang="ru">Voronin M.V.</copyright-holder><copyright-holder xml:lang="en">Voronin M.V.</copyright-holder><license xml:lang="ru" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>Данная работа распространяется под лицензией Creative Commons Attribution 4.0.</license-p></license><license xml:lang="en" license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>This work is licensed under a Creative Commons Attribution 4.0 License.</license-p></license></permissions><self-uri xlink:href="https://kulawr.msal.ru/jour/article/view/158">https://kulawr.msal.ru/jour/article/view/158</self-uri><abstract><p>The purpose of this article is to describe the need for establishment of the institution entitled “genetic ombudsman” — a new body in the field of human rights protection — in the Russian Federation. The paper addresses the following issues: (1) the role of the ombudsman as an institution acting as a guarantor of democratic freedoms and the value of human life; (2) historical development and the process of becoming the ombudsman; (3) the need to create the institution of the genetic ombudsman during the era of Industry 4.0 (digital society); (4) factors that influence the society’s demand for the establishment of the aforementioned institution; (5) the main goals and objectives of the genetic ombudsman (legal, economic, medical). This research allowed for the possibility not only to highlight the importance of the genetic ombudsman in the context of the political and legal reality but also to identify existing gaps in the normative regulation. In this article, based on the key provisions of the theory of competence, the author attempted to conceptualize the activities of the genetic ombudsman, describe characteristics of this institution, and summarize areas for further research. In the course of this study, logical, comparative legal and formal methods were used.</p></abstract><kwd-group xml:lang="en"><kwd>genetic ombudsman</kwd><kwd>genetic education</kwd><kwd>actors</kwd><kwd>information</kwd><kwd>Industry 4.0</kwd><kwd>digital transformation</kwd><kwd>genomic technologies</kwd><kwd>freedom</kwd><kwd>interdisciplinarity</kwd></kwd-group><funding-group><funding-statement xml:lang="en">Supported by the Russian Ministry of Science and Higher Education (Topic: Legal Regulation of Accelerated Development of Genetic Technologies: Research and Methodology Framework; No 730000Ф.99.1.БВ16АА02001).</funding-statement></funding-group></article-meta></front><back><ref-list><title>References</title><ref id="cit1"><label>1</label><citation-alternatives><mixed-citation xml:lang="ru">Agafonov, V.B., Belousov, D.Yu., and Vypkhanova, G.V., (2022). Genetic technologies. Mokhov, A.A., ed. LLC “Law Firm Contract” (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Agafonov, V.B., Belousov, D.Yu., and Vypkhanova, G.V., (2022). Genetic technologies. Mokhov, A.A., ed. LLC “Law Firm Contract” (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit2"><label>2</label><citation-alternatives><mixed-citation xml:lang="ru">Council of Europe. Protection, Promotion and Development of the Ombudsman Institution, (2020). Moscow: Delovoy Stil’. Pp. 9–11. Available at: https://rm.coe.int/protection-promotion-and-development-of-the-ombudsman-institution/1680a066c6. [Accessed 15.01.2022] (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Council of Europe. Protection, Promotion and Development of the Ombudsman Institution, (2020). Moscow: Delovoy Stil’. Pp. 9–11. Available at: https://rm.coe.int/protection-promotion-and-development-of-the-ombudsman-institution/1680a066c6. [Accessed 15.01.2022] (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit3"><label>3</label><citation-alternatives><mixed-citation xml:lang="ru">Gil-Robles, A., (2004). Parliamentary control of the administration (The ombudsman). Moscow School of Political Studies.</mixed-citation><mixed-citation xml:lang="en">Gil-Robles, A., (2004). Parliamentary control of the administration (The ombudsman). Moscow School of Political Studies.</mixed-citation></citation-alternatives></ref><ref id="cit4"><label>4</label><citation-alternatives><mixed-citation xml:lang="ru">Protopopova, N.I., (2008). Dialectics of the category of “interest” at the stage of formation of bourgeois socio-economic relations in Europe. Vestnik of TGU, 2(58), pp. 11–21 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Protopopova, N.I., (2008). Dialectics of the category of “interest” at the stage of formation of bourgeois socio-economic relations in Europe. Vestnik of TGU, 2(58), pp. 11–21 (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit5"><label>5</label><citation-alternatives><mixed-citation xml:lang="ru">Rasheva, N.Yu. and Gomonov, N.D, (2006). The value of law in the context of the value system of modern Russian society. Vestnik of MSTU, 9(1), pp. 172–181 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Rasheva, N.Yu. and Gomonov, N.D, (2006). The value of law in the context of the value system of modern Russian society. Vestnik of MSTU, 9(1), pp. 172–181 (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit6"><label>6</label><citation-alternatives><mixed-citation xml:lang="ru">REC Digital Education, (2021). Genetics and Law: The Challenges of Time 2020–2030: Young legislators of the Chamber of Young Legislators discussed questions of legal regulation of genetic technologies. Available at: http://digital-edu-center.law.msu.ru/tpost/uhu22936u1-kruglii-stol-genetika-i-pravo-vizovi-vre [Accessed 15.01.2022] (In Russ.).</mixed-citation><mixed-citation xml:lang="en">REC Digital Education, (2021). Genetics and Law: The Challenges of Time 2020–2030: Young legislators of the Chamber of Young Legislators discussed questions of legal regulation of genetic technologies. Available at: http://digital-edu-center.law.msu.ru/tpost/uhu22936u1-kruglii-stol-genetika-i-pravo-vizovi-vre [Accessed 15.01.2022] (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit7"><label>7</label><citation-alternatives><mixed-citation xml:lang="ru">Sinyukov, V.N. and Mokhov, A.A., (2021). Law and resistance of pandemic: opportunities and prospects. Moscow: Prospekt (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Sinyukov, V.N. and Mokhov, A.A., (2021). Law and resistance of pandemic: opportunities and prospects. Moscow: Prospekt (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit8"><label>8</label><citation-alternatives><mixed-citation xml:lang="ru">Suvorova, E.I., (2019). The use of genetic information in insurance. Zakon i Pravo, 9, pp. 37–43 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Suvorova, E.I., (2019). The use of genetic information in insurance. Zakon i Pravo, 9, pp. 37–43 (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit9"><label>9</label><citation-alternatives><mixed-citation xml:lang="ru">The Chamber of Young Legislators under the Federation Council, (2021). Genetics and Law: The Challenges of Time 2020–2030: Young legislators of the Chamber of Young Legislators discussed some issues of legal regulation of genetic technologies. Available at: https://pmzsf.ru/news/genetika-i-pravo-vyzov-vremeni-2020-2030-molodye-parlamentarii-pmz-obsudili-voprosy-pravovogo-reguli.html [Accessed 15.01.2022] (In Russ.).</mixed-citation><mixed-citation xml:lang="en">The Chamber of Young Legislators under the Federation Council, (2021). Genetics and Law: The Challenges of Time 2020–2030: Young legislators of the Chamber of Young Legislators discussed some issues of legal regulation of genetic technologies. Available at: https://pmzsf.ru/news/genetika-i-pravo-vyzov-vremeni-2020-2030-molodye-parlamentarii-pmz-obsudili-voprosy-pravovogo-reguli.html [Accessed 15.01.2022] (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit10"><label>10</label><citation-alternatives><mixed-citation xml:lang="ru">Tikhomirov, Yu.A., (2001). Theory of expertise. Yurinformcenter (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Tikhomirov, Yu.A., (2001). Theory of expertise. Yurinformcenter (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit11"><label>11</label><citation-alternatives><mixed-citation xml:lang="ru">Trifonov, S.G., (2020). Constitutional and Legal Institute of the Regional Ombudsman, its Features, and Types in Modern States. Scientific notes of Crimean Federal University of V.I. Vernadsky. Legal sciences, 6(72), pp. 118–125 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Trifonov, S.G., (2020). Constitutional and Legal Institute of the Regional Ombudsman, its Features, and Types in Modern States. Scientific notes of Crimean Federal University of V.I. Vernadsky. Legal sciences, 6(72), pp. 118–125 (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit12"><label>12</label><citation-alternatives><mixed-citation xml:lang="ru">Voronin, M.V. and Sakhipgareeva, A.R., (2021). Activities of actors of genetic and legal education: Theory and practice. Moscow University Bulletin. Series: Law, 6 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Voronin, M.V. and Sakhipgareeva, A.R., (2021). Activities of actors of genetic and legal education: Theory and practice. Moscow University Bulletin. Series: Law, 6 (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit13"><label>13</label><citation-alternatives><mixed-citation xml:lang="ru">Voronin, M.V., (2016). Foundations and manifestations of law. Moscow: Urlitinform (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Voronin, M.V., (2016). Foundations and manifestations of law. Moscow: Urlitinform (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit14"><label>14</label><citation-alternatives><mixed-citation xml:lang="ru">Voronin, M.V., (2019). Genomic research as an example of the transformation of the measure of law in a legally significant behavior. Courier of Kutafin Moscow State Law University (MSAL), 4, pp. 152-159, https://doi.org/10.17803/2311-5998.2019.56.4.152-159 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Voronin, M.V., (2019). Genomic research as an example of the transformation of the measure of law in a legally significant behavior. Courier of Kutafin Moscow State Law University (MSAL), 4, pp. 152-159, https://doi.org/10.17803/2311-5998.2019.56.4.152-159 (In Russ.).</mixed-citation></citation-alternatives></ref><ref id="cit15"><label>15</label><citation-alternatives><mixed-citation xml:lang="ru">Voronin, M.V., (2020). Measure of freedom within data use of genetic information. The Legislation, 12, pp. 16–21 (In Russ.).</mixed-citation><mixed-citation xml:lang="en">Voronin, M.V., (2020). Measure of freedom within data use of genetic information. The Legislation, 12, pp. 16–21 (In Russ.).</mixed-citation></citation-alternatives></ref></ref-list><fn-group><fn fn-type="conflict"><p>The authors declare that there are no conflicts of interest present.</p></fn></fn-group></back></article>
